I learned so much at the inhibitor summit I attended in New Mexico. Not only was my son Walter able to meet kids just like him, but I was able to meet parents dealing with the same issues as me. It felt good to know my husband and I weren’t alone. After this summit, we decided we will no longer miss anymore.
It’s been a while since I’ve blogged. We went to our first summit for hemophilia. This was an inhibitor summit. I’ve mentioned in earlier blogs a little bit about inhibitors. Having a child with hemophilia is a lot of work. Having a child with severe hemophilia A is even more work. To top off that already hard work, having a child with an inhibitor is a different type of beast.
We are now approaching Christmas and have been here since before thanksgiving. Walter is a tough guy if I must say so myself. I