Raising a Child with Hemophilia: The next step

Now a little advice for parents dealing with hemophilia for the first time. It sucks when you first find out. It was almost unbelievable to me. Men don’t carry the gene so Walter would have got it from me. Because I was adopted and I don’t know who my biological father is I will never know if this runs in my family. Sometimes I felt as though it was my fault, and I didn’t feel it was fair. I didn’t like for people to ask me questions about Walter because I didn’t feel it was their business. However, I’ve grown a lot since then and I’m not embarrassed by it, and I don’t want Walter to be.

walter

Walter’s Hickman line got infected and that infected his blood. A blood infection could be deadly and I honestly told the doctor I don’t like the Hickman. Walter was around 6months at this time, and they said his hickman line could be replaced with a portacath. Now the portacath could be placed under his skin and the risk of infection is lower. However, with a portacath it has to accessed with a need and Owen and I would have to learn. Later on in my blogs I will have a video of me accessing Walters Port and giving him the factor VIII.

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