Hemophilia Daredevil

Walter has severe hemophilia A and continues to do things like this. He’s a daredevil!

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Hemophilia A: My child is normal

When people ask me about hemophilia, they assume it will impact Walter negatively. My response to those who think like that, he’s just like any other kid, Walter just needs to be a bit more cautious. Right now Walters at the age where he understands that some of the things he does can cause a bump.

Raising a Child with Hemophilia

My first thought to finding out my child had hemophilia was, “How are we going to deal with this?” I was currently a second year student and all of this was happening around finals. I immediately thought the worst. I felt like he wouldn’t be able to have a normal childhood. I also felt as though his father and I wouldn’t be able to accomplish the goals we wanted to in life. I knew I needed to educate myself on this illness. The first step the doctors had to make was putting a hickman line in Walter’s chest, for him to get factor VIII. Walter had to get a hickman because he was a baby and that’s the smallest thing you can put in a baby. Factor VIII is a medicine that helps the blood clot. It is something a hemophiliac needs.

hickmanTaking care of a central line was much more harder than I thought. We weren’t told of how easy these lines can get infected; especially with a baby.